Do Health Insurance Plans Cover Rare Diseases?

The human body is a mystery that medical professionals are still solving. Our body is capable of withstanding extreme situations as well as developing thousands of diseases. While some diseases like diabetes are widely found among people, a lot of people also end up suffering from certain rare diseases. You may wonder what are rare diseases and if they are covered by health insurance in India. Let’s find out.

Read More

Policybazaar exclusive benefits
  • 30 minutes claim support*(In 120+ cities)
  • Relationship manager For every customer
  • 24*7 claims assistance In 30 mins. guaranteed*
  • Instant policy issuance No medical tests*

*All savings are provided by the insurer as per the IRDAI approved insurance plan. Standard T&C Apply

*Tax benefit is subject to changes in tax laws. Standard T&C Apply

Find affordable plans with up to 25% Discount**
  • 1
  • 2
  • 3
  • 4

Who would you like to insure?

  • Previous step
    By clicking on “Continue”, you agree to our Privacy Policy and Terms of use
    Previous step

      Popular Cities

      Previous step
      Previous step

      Do you have an existing illness or medical history?

      This helps us find plans that cover your condition and avoid claim rejection

      Get updates on WhatsApp

      Previous step

      When did you recover from Covid-19?

      Some plans are available only after a certain time

      Previous step
      Advantages of
      entering a valid number
      You save time, money and effort,
      Our experts will help you choose the right plan in less than 20 minutes & save you upto 80% on your premium

      What are Rare Diseases?

      Rare diseases refer to the diseases that are found in only a small percentage of the total population. According to World Health Organization (WHO), a disease that affects 1 or less people per 1000 people is referred to as a rare disease. But in India, diseases that affect less than 1 individual for every 2500 individuals are categorized as rare diseases.

      About 72% of rare diseases are genetic and thus, are present in a person right from childhood. Hence, rare diseases are life-threatening and people suffering from them have to live with them throughout their lives. At present, about 96 million people in India are living with a rare disease, which comes about 1/5th of the total population.

      Common Types of Rare Diseases

      Currently, more than 7000 rare diseases have been identified across the world. Some of the most common rare diseases are:

      • Pompe
      • Haemophilia
      • Sickle Cell Anaemia
      • Cystic Fibrosis
      • Gaucher Disease
      • Haemangioma
      • Osteopetrosis
      • Tyrosinemia
      • Fabry Disease
      • Maple Syrup Urine Disease
      • Hurler Syndrome
      • Wolman Disease

      Treatment of Rare Diseases

      A cure for most rare diseases is not available. About 95% of rare diseases do not have any approved treatment. Not just the treatment, even the diagnosis of such diseases are not timely leading to increased sufferings of the patient. In case the treatment for a rare disease is available, it is very expensive. For example, the treatment of Gaucher Disease can easily go beyond Rs 40 lakh. Similarly, the treatment of Pompe can cost you more than Rs 35 lakh.  

      Moreover, rare diseases are mostly chronic in nature. Thus, their treatment will go on for a long time and in turn, will cost you a lot of money. Moreover, patients may be required to go through regular diagnostic tests and put on medications for a long time. Since very few pharmaceutical companies across the world manufacture drugs for the treatment of rare diseases, they are highly expensive. This is the reason why rare diseases are also known as ‘orphan diseases’ and the drugs used in their treatment are referred to as ‘orphan drugs’.

      Are Rare Diseases Covered by Health Insurance Plans in India?

      Yes. Several health insurance plans in India cover the treatment cost of a rare disease. Irrespective of whether a rare disease is genetic or not, you will be able to claim the treatment expenses under your health insurance policy. The policy will provide coverage for the medical expenses incurred on hospitalization, surgeries, post-hospitalization consultations and diagnostic tests, day care treatments, etc. Depending on your budget, you can opt for health insurance for rare diseases with a coverage amount of up to Rs 6 crore.

      However, all rare diseases may not be covered under health insurance plans in India. Moreover, the coverage provided by all health plans are not the same. Hence, it is recommended that you check the list of rare diseases covered under a health insurance policy before buying it. Also, make sure to opt for a health plan that will adequately cover your medical expenses in case you are diagnosed with a rare disease.

      Waiting Period to Cover Rare Diseases Under Health Insurance

      Although rare diseases are covered under health insurance, the coverage is not available as soon as you buy the plan. You need to first spend a waiting period, post which the coverage will be provided to you. While all health insurance plans come with an initial waiting period of 30 days, coverage for most rare diseases will be available after a waiting period of 2 years. This means only after your health insurance policy is consecutively renewed twice, the treatment cost of a rare disease is covered by your insurance provider.

      However, the 2-year waiting period will be applicable only if you are first diagnosed with a rare disease after buying the health insurance policy. In case you were diagnosed with a rare disease before purchasing the policy, the disease will be considered as a pre-existing disease. In such a case, a pre-existing disease waiting period will be applicable. Most health insurance plans cover pre-existing diseases after 2 to 4 years of continuous coverage. Thus, you may be required to wait for up to 4 policy renewals to get your pre-existing rare disease covered.

      Tips to Prevent the Occurrence of Rare Diseases

      Although the exact causes for various rare diseases are not known, you can follow the precautionary tips given below to live a healthy life and prevent rare diseases:

      • Eat a healthy diet rich in green vegetables and fruits
      • Avoid smoking
      • Avoid regular consumption of alcohol
      • Avoid exposure to harmful chemicals
      • Stay active and exercise regularly
      • Get appropriately vaccinated

      Summing It Up

      Rare diseases may not be widely prevalent but can be life-threatening. Since their treatments are expensive and long-term, buying health insurance for rare diseases is the only way to prevent your savings from getting exhausted. However, make sure to compare health insurance online to find an ideal policy that fits within your budget.

      Disclaimer: Policybazaar does not endorse, rate or recommend any particular insurer or insurance product offered by an insurer.

      Health insurance articles

      Recent Articles
      Popular Articles
      Father’s Day 2024: Gift Your Father Health Insurance This Year

      14 Jun 2024

      Father’s Day is celebrated every year on the third Sunday of
      Read more
      Does SBI Health Insurance Cover Dental Treatments?

      05 Jun 2024

      SBI General Insurance Company provides comprehensive coverage
      Read more
      Does ICICI Lombard Health Insurance Cover Dental Treatments?

      05 Jun 2024

      ICICI Lombard General Insurance Company offers various health
      Read more
      Does Reliance Health Insurance Cover Dental Treatments?

      04 Jun 2024

      Dental insurance is crucial in safeguarding oral health as it pays
      Read more
      Does HDFC ERGO Health Insurance Cover Dental Treatments?

      22 May 2024

      HDFC ERGO General Insurance Company offers various health
      Read more
      How to Apply for Ayushman Bharat Pradhan Mantri Jan Arogya Yojana (PM-JAY)?
      Ayushman Bharat Yojana is a flagship health insurance scheme launched by the Government of India to offer universal
      Read more
      Best Health Insurance Plans for Senior Citizens
      Senior citizens are the most prone to diseases. Considering the medical inflation in India, buying health insurance
      Read more
      10 New IRDAI Health Insurance Guidelines in 2024
      Health insurance penetration in India is far lower than it should be. A significant chunk of the Indian population
      Read more
      10 Major Benefits of Ayushman Bharat Yojana
      Pradhan Mantri Jan Arogya Yojana (PM-JAY) is the second component under Ayushman Bharat Scheme. PM Narendra Modi
      Read more
      Does Health Insurance Provide Coverage for LASIK Eye Surgery?
      A vast majority of the Indian population is suffering from vision problems. For some of them, LASIK eye surgery is
      Read more

      Download the Policybazaar app
      to manage all your insurance needs.